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National Resource Directory

key information

source: Centers for Disease Control and Prevention


The Sickle Cell Disease National Resource Directory is a listing of national agencies, specialty care centers, and community-based organizations that provide services and resources for people affected by sickle cell disease (SCD). The goal of this directory is to help people find SCD services and resources. The directory was last updated in June 2017.

This directory is sorted by national and state resources and listed in A-Z order. Within each state, the resources are listed by type: Providers/Sickle Cell Centers, Non-Profits/Associations/Foundations, and Support Groups. In many cases, organizations offer both clinical and non-clinical resources and services. When making contact, ask about other services that may be offered such as support groups and social services.

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