LaKisha Johnson | oneSCDvoice

LaKisha M. Johnson, PhD(c)

Co-Founder
Sickle Cell Support Services
Pine Bluff, Arkansas, United States

Lakisha Johnson is the Executive Director of Sickle Cell Support Services (SCSS) in Little Rock, Arkansas. LaKisha & her late husband Germaine started the Arkansas Sickle Cell Support Services organization together. After her husband’s death due to Sickle Cell complication she manages to still be a strong advocate for the SC community. She orchestrates several events to raise funds for people in the state of Arkansas as well as raise awareness. These funds help families that have been burdened financially due to SC. ARSCSS helps cover medical, utility, funeral and other expenses. During summers, she hosts a SC camp for children that allows them to participate in a host of events as well as teach them more about their disease & how to manage it.

Lakisha has turned her efforts into advocating for and servicing sickle cell patients in the state of Arkansas. Lakisha has served as an advocate, curriculum coordinator, trainer, program developer, grant writer, community planner, program evaluator and community liaison for her organization. She also advises the state regarding the needs for sickle cell warriors. Lakisha’s advocacy efforts can be found through her work with SCSS. Lakisha actively participates and represents sickle cell during Rare Disease Advocacy in Washington, D.C. She is currently a candidate for a PhD in Applied Gerontology at the University of North Texas.