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Whether you’re a first-time visitor or someone already well familiar with our growing collection of the best and most trustworthy sickle cell disease resources from across the web, there’s a lot more to oneSCDvoice. But it’s exclusively available to our registered members. Registering as a member is quick and easy, and best of all, it’s FREE. We hope you’ll jump in and explore all that oneSCDvoice has to offer.
|Access to Trusted Resources & SCD Education sections|
|Access to Social Wall (Community Discussion)|
|SCDteams Private Groups|
|Weekly Activity E-mails|
|Bookmarking of Resources & Conversations|
|Customized Member Proﬁle|
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The Social Wall is the heart of oneSCDvoice — where you can share your thoughts, ask questions and discuss the latest SCD news and research, as well as post photos, videos, or links.
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News and Resources
The onevoice difference
Everything you’ll find on this site is curated by professional researchers who are guided by our councils of healthcare professionals, advocates, patients, and caregivers. We provide only the best, most trusted rare-disease resources.
This onevoice site is maintained in collaboration with the Sickle Cell Disease Association of America . They help us keep up-to-date with the fast-changing world of rare disease and ensure that we always meet the needs of the community.
Safe Community Space
Our Social Wall and private SCDteam groups are members-only features, with the aim of providing a safe, secure space for community-driven conversations, moderated by a disease-knowledgeable community leader.
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oneSCDvoice Working Group
Charles Jonassaint, PhDAssistant Professor of Medicine
Social Work & Clin & Translational Science
U Pittsburgh School of Medicine
Nancy M. RenéCo-Founder
Supporting Autism, Sickle Cell Disease,
and K–12 Education
Shirley Miller, MANational Advocate
Kathryn Hassell, MDDirector
CO Sickle Cell Treatment & Research Ctr
Marie Ojiambo, PharmDFounder
Sickle Strong Initiative
TaLana Hughes, MPHExecutive Director
Sikcell.com and @sikcell on Twitter
Sohail Rana, MDDirector
Community Outreach & Education
Ctr for SCD, Howard U
Shamonica WigginsFormer CEO & Founder,
Social Media Manager,
Sickle Cell Community Consortium
Edward Donnell, MD, MPHDirector
Association of Black Cardiologists, Inc.
Gary A. GibsonPresident & CEO
Martin Center SC Initiative
Lewis Hsu, MD, PhDDirector
Pediatric SC Program
Children’s Hosp of U IL
Lanetta Bronté-Hall, MD, MPH, MSPHPresident and Chief Health Officer
The Foundation for SCD Research
Yvonne Carroll, RN, JDPresident
Director, Patient Services - Hematology
St. Jude Children's Research Hospital